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Jemima and Maisie

Jemima and Maisie’s mum Amy shares their family’s story… My girls were diagnosed with albinism when Jemima was 2½ and Maisie 8 months of age. My husband and I had no family history of albinism and it came as such a shock, it was devastating. We went to a geneticist and they explained that albinism is like any other genetic condition and that my husband and I are both carriers of albinism gene so we have a 25% chance that our children will be born with albinism. Albinism is a rare genetic condition affecting a...
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Addy and amy

Young Kids, Big Hearts

Meet these young fundraisers giving back. Adeline Roe A Can:Do 4Kids client for over 8 years, Adeline Roe is an amazing young fundraiser in our community. Diagnosed with Cone Dystrophy, her vision is described as a blurry black and white photo. With no colour vision, poor fine and distance vision and an extreme sensitivity to light; Adeline has never let that hold her back from getting out in the community and giving things a go. With her strong will and determination, Adeline swam in the 2015 Brighton Jetty Classic and has par...
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Jemima and Maisie

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